Support, awareness and community
PNH Scotland offers support, awareness initiatives, and a community for people living with PNH in Scotland.
Paroxysmal Nocturnal Haemoglobinuria (PNH) is a very rare blood disorder that affects the development of red blood cells which are then prematurely destroyed by the immune system.
Although rare, PNH can be serious and life-altering which is why it is important to understand your condition and know where to get the best care and most accurate advice.
Find out more about PNH
Find out more about PNH
PNH Scotland is a registered Scottish charity (SC042709) offering support, awareness initiatives, and a community for people living with PNH. The charity aims to provide a point of contact for newly diagnosed patients, and their families, to reduce isolation and improve access to resources. The charity works towards reducing diagnosis times by ensuring trusted, accurate information is available for patients and medical professionals throughout the country.